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Abstract

Chronic kidney disease (CKD) is a complex disease that poses various challenges to patients. Health Literacy (HL) is considered essential for the effective management of CKD. This phenomenological study explored health literacy in 12 patients with chronic kidney disease undergoing hemodialysis in Padang, Indonesia. Semi-structured individual interviews were conducted, and the data were analysed and interpreted using the hermeneutical phenomenological approach of Diekelmann. We found six themes: sources of information and knowledge, differences in patient attitudes and behaviors as health information seekers, learning needs for successful treatment and care, effective learning and education methods, experiences with alternative treatments, and positive relationship with the medical team. The findings revealed significant disparities in patients' relationships to health information; findings also indicated that interaction with healthcare professionals is crucial and may make up for HL difficulties.

Keywords

CKD, health literacy, hemodialysis, phenomenology

Author Bio(s)

Ns. Fitri Mailani, S.Kep, M.Kep, is an assistant professor in the Department of Medical Surgical and Emergency Nursing, Faculty of Nursing, Universitas Andalas, Padang, Indonesia. She has 10 years of teaching and research experience in medical Surgical nursing. Her research interests include qualitative study on patient's experence with chronic diseases, physical and mental health in patients with kidney diseases and adults, and health education. Please direct correspondence to fitrimailani22@nrs.unand.ac.id

Ns. Rahmi Muthia, S.Kep M.Kep, is a lecturer in the Departement of Medical Surgical and Emergency Nursing, Faculty of Nursing, Universitas Andalas, Padang, Indonesia. She has 4 years of teaching and research experience in adult nursing. Her research interests including chronic illnesses, advance nursing, and end of life care.

Dr. Emil Huriani, S.Kp, MN, is an associate professor in the Department of Medical Surgical and Emergency Nursing, Faculty of Nursing, Universitas Andalas, Padang, Indonesia. She has 20 years of teaching and research experience in emergency nursing and critical care nursing. Her research interests include qualitative study on patient's experience with chronic diseases, physical and mental health in patients with kidney diseases, and quality of life and health education on patients with cardiac diseases.

Dr. Ns. Rika Sarfika, S.Kep., M.Kep, is an assistant professor in the Department of Mental Health and Community Nursing, Faculty of Nursing, Universitas Andalas, Padang, Indonesia. She has 12 years of teaching and research experience in mental health. Her research interests including mental health in patients with chronic illnesses, mental illness prevention in children, adolescents and adults, and health education.

Acknowledgements

The authors express gratitude to Faculty of Nursing Universitas Andalas for providing financial support for this study.

Publication Date

8-24-2024

Creative Commons License

Creative Commons Attribution-Noncommercial 4.0 License
This work is licensed under a Creative Commons Attribution-Noncommercial-Share Alike 4.0 International License.

DOI

10.46743/2160-3715/2024.6856

ORCID ID

https://orcid.org/0000-0002-8787-7002

ResearcherID

AEU-6317-2022

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