The prematurity carries some difficulties for families during the preterm infant hospitalization, as well as, after hospital discharge. In this context, is required a specific knowledge about the preterm biological characteristics, family’s life conditions, health care, and social context. This study aims to analyze parent’s experiences on daily home care for preterm infants focusing on individual, social and institutional vulnerabilities. Descriptive qualitative study was developed through the hermeneutic perspective approach, in South of Brazil with six families, who had babies discharged from Neonatal Intensive Care Unit. Non-structured interviews were recorded in the home visit with 12 participants (parents) and genogram and ecomap were applied. Emerged as core theme: Parents’ feelings related to preterm care at home and their interaction with health services. During the first month after discharge, parents were emotionally vulnerable. There is a lack of connection between parents and Primary Health Care, what increases institutional vulnerability. After discharge, parents have experienced an individual, social, and institutional vulnerability. To minimize their institutional vulnerability, the health services need to be organized in a network offering qualified follow-up. Applying the Health Policy to care for premature infant, consequently, reducing the individual vulnerability and recognize social vulnerabilities related to premature infant care.


parents, preterm infant, vulnerability, primary health care, descriptive qualitative study

Author Bio(s)

Claudia Silveira Viera is a nurse specializing in Neonatal Nursing. She is also an Associate Professor in the Department of Nursing at Federal University of São Carlos and an Associated Professor at Western State University of Parana. Please direct correspondence to clausviera@gmail.com.

Leticia Pancieri earned her PhD in Sciences from the University of São Paulo at Ribeirão Preto College of Nursing. She is also a specialist in Public Health with emphasis on Family Health and Auditing in Health Organizations from the University of Ribeirão Preto. Please direct correspondence to eticia.pancieri@usp.br.

Rosane Meire Munhak da Silva has a PhD in Sciences. She is also an Assistant Professor at the Western State University of Parna. Please direct correspondence to zanem2010@hotmail.com.

Monika Wernet is an Associate Professor in the Department of Nursing at Federal University of São Carlos. Please direct correspondence to monika.wernet@gmail.com.

Maria Aparecida Munhoz Gaiva is an Associate Professor at the Federal University of Mato Grosso Please direct correspondence to mamgaiva@yahoo.com.br.

Debora Falleiros de Mello is an Associate Professor at the Nursing School of Ribeirao Preto. Sao Paulo University. Please direct correspondence to defmello@errp.usp.br.

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