Little is known about the experience among adult children who have a parent with Parkinsons Disease (PD). The purpose of this study was to explore, appreciate, and describe their experiences using a phenomenological methodology. Narratives were collected from seven participants who have a parent diagnosed with PD and analyzed according to Colaizzis (1978) phenomenological data analysis method. Seven thematic clusters were identified and an exhaustive description is presented to summarize the essence of their lived experience. The study indicates a strong sense of essential positivism from the participants stories, and overall, it seems PD has brought some degree of biological, psychological, socially, and/or spiritual meaning to their lives that they may not have otherwise noticed or experienced.


Parkinsons Disease, Phenomenology, Biopsychosocial-spiritual, Adult Children, and Illness


The authors would like to thank Dr. Eben McClenahan for his support and mentorship of this study. The authors also wish to acknowledge Christy Bond, M.S., for her assistance in the research process and the Eastern North Carolina Parkinson’s Support Group for their funding and support.

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Creative Commons Attribution-Noncommercial 4.0 License
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