Faculty Articles
Applicability of the SMART model of transition readiness for sickle cell disease
Document Type
Article
Publication Title
Journal of Pediatric Psychology
ISSN
0146-8693
Publication Date
12-30-2015
Abstract
OBJECTIVES: This study aimed to examine the applicability of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) model for adolescents and young adults (AYA) with sickle-cell disease (SCD). METHODS: 14 AYA with SCD (14-24 years old) and 10 clinical experts (6-20 years of experience) completed semi-structured interviews. AYA completed brief questionnaires. Interviews were coded for themes, which were reviewed to determine their fit within the SMART model. RESULTS: Overall, most themes were consistent with the model (e.g., sociodemographics/culture, neurocognition/IQ, etc.). Factors related to race/culture, pain management, health-care navigation skills, societal stigma, and lack of awareness about SCD were salient for AYA with SCD. CONCLUSIONS: Findings suggest the SMART model may be appropriate in SCD with the consideration of disease-related stigma. This study is a step toward developing a disease-specific model of transition readiness for SCD. Future directions include the development of a measure of transition readiness for this population.
DOI
10.1093/jpepsy/jsv120
Volume
41
Issue
5
First Page
543
Last Page
554
NSUWorks Citation
Mulchan, S.,
Valenzuela, J.,
Crosby, L.,
Pow Sang, C. D.
(2015). Applicability of the SMART model of transition readiness for sickle cell disease. Journal of Pediatric Psychology, 41(5), 543-554.
Available at: https://nsuworks.nova.edu/cps_facarticles/988
