Presentation Title
A National Research Incubator Network for Health Research
Speaker Credentials
Associate Professor
Speaker Credentials
Ph.D.
College
Dr. Pallavi Patel College of Health Care Sciences, Speech-Language Pathology
Location
Nova Southeastern University, Davie, Florida, USA
Format
Podium Presentation
Start Date
21-2-2020 8:30 AM
End Date
21-2-2020 4:00 PM
Abstract
A National Research Incubator Network for Health Research Jackie Hinckley, Ph.D., Associate Professor, College of Health Care Sciences Objective: This project fosters the training and development of effective multi-stakeholder research groups that include patient partners with communication disabilities. Background: Health research directly affects individuals living with a particular health condition. Yet, health research is often initiated exclusively by researchers with little to no input from those who will be affected by the research. For patients, clinicians, and researchers to work collaboratively, preparatory training and skill development is needed. Methods: We have developed a set of tools that enable and empower this kind of collaborative health research, described by PCORI as “research done differently”. We are now working towards a national network that will serve as a research team incubator, providing tools, shared knowledge, funding opportunities, mentorship and training. Results: NSU is the hub of this national research incubator for developing truly collaborative research with patients with communication disabilities, clinicians, and researchers. Conclusion: It is possible to include people with communication disabilities into all aspects of research planning, priorities, data collection, analysis, and dissemination. Grants: This project was funded through Patient-Centered Outcomes Research institute (PCORI) Eugene Washington PCORI Engagement Awards (2017-2019, 2020 – 2021).
A National Research Incubator Network for Health Research
Nova Southeastern University, Davie, Florida, USA
A National Research Incubator Network for Health Research Jackie Hinckley, Ph.D., Associate Professor, College of Health Care Sciences Objective: This project fosters the training and development of effective multi-stakeholder research groups that include patient partners with communication disabilities. Background: Health research directly affects individuals living with a particular health condition. Yet, health research is often initiated exclusively by researchers with little to no input from those who will be affected by the research. For patients, clinicians, and researchers to work collaboratively, preparatory training and skill development is needed. Methods: We have developed a set of tools that enable and empower this kind of collaborative health research, described by PCORI as “research done differently”. We are now working towards a national network that will serve as a research team incubator, providing tools, shared knowledge, funding opportunities, mentorship and training. Results: NSU is the hub of this national research incubator for developing truly collaborative research with patients with communication disabilities, clinicians, and researchers. Conclusion: It is possible to include people with communication disabilities into all aspects of research planning, priorities, data collection, analysis, and dissemination. Grants: This project was funded through Patient-Centered Outcomes Research institute (PCORI) Eugene Washington PCORI Engagement Awards (2017-2019, 2020 – 2021).