Faculty Articles
HIV normalization message and its implication on the lives of perinatally HIV‐infected youth in Puerto Rico
Publication Title
Journal of Pharmaceutical Health Services Research
Publisher
Wiley
ISSN
1759-8893
Publication Date
8-31-2017
Keywords
HIV, normalization, perinatally‐infected, Puerto Rico, qualitative
Abstract
Objective
To examine the impact of the HIV normalization discourse on the life of a group of perinatally HIV‐infected (pHIV‐I) youth in Puerto Rico.
Methods
A qualitative research study was conducted to explore the life experiences of pHIV‐I youth in Puerto Rico. Twenty in‐depth interviews were carried out among 12 women and eight men aged 18–30 years. Questions focused primarily on their life experiences and the meaning they ascribe to HIV. Interviews were analysed, and interrelationships, connections and patterns were assessed.
Key findings
Normalization messages were present in most of the participants’ narratives. The majority considered their HIV diagnosis like ‘any other health condition’ and most of them had a positive attitude towards life. When study participants positioned themselves from a social perspective, contradictions of normalization messages emerged. Some participants reported that because HIV is highly stigmatized, their rejections, discrimination and stigma experiences are different from those of patients with other chronic conditions. Those with HIV also face unique and difficult situations such as losing family members, dealing with a potentially fatal illness, and maintaining secrecy about their health conditions.
Conclusion
While the normalization discourse is very common in the medical field, it does not necessarily translate into the personal and social spheres of HIV‐positive youth. Interventions to assist patients in dealing with the social implications of the HIV condition are still needed.
DOI
10.1111/jphs.12194
Volume
8
Issue
4
First Page
241
Last Page
246
Disciplines
Medicine and Health Sciences | Pharmacy and Pharmaceutical Sciences
NSUWorks Citation
Silva‐Suárez, Georgina; Rabionet, Silvia; and Zorrilla, Carmen D., "HIV normalization message and its implication on the lives of perinatally HIV‐infected youth in Puerto Rico" (2017). Faculty Articles. 256.
https://nsuworks.nova.edu/hpd_corx_facarticles/256
