Speaker Credentials
OMS-III
Speaker Credentials
BS
College
Dr. Kiran C. Patel College of Osteopathic Medicine, DO
Medical Specialty
Neurology
Format
Poster
Start Date
November 2024
End Date
November 2024
Track
1
Abstract
A Qualitative Evaluation of Huntington’s Disease Perspectives on Social Media Paige Conrad OMS-III Nova Southeastern University Kiran C. Patel College of Osteopathic Medicine, Heather Sterchele OMS-III Nova Southeastern University Kiran C. Patel College of Osteopathic Medicine, Ryan Wong OMS-III Nova Southeastern University Kiran C. Patel College of Osteopathic Medicine, Sahar S Amini D.O. Objective: The objective of this study is to qualitatively examine the content of the most watched videos related to HD on the social media application Tik Tok and explore how social media is being utilized to discuss the disease. Background: Huntington’s Disease (HD) is a neurodegenerative disorder that presents with neuropsychiatric symptoms, movement disorders, and gradual cognitive decline. Later stages of HD and an increased emotional burden on caretakers have been recorded. Previous studies have explored the qualitative impacts of HD on communication between patients, family members, and caregivers; however, the use of communication through social media related to HD has not yet been examined. Methods: A cross-sectional qualitative analysis of the top 100 most-liked videos with the search “Huntington's Disease” on TikTok as of January 27, 2024, was conducted. Video content that primarily discussed HD was included and those unrelated to HD were excluded. Principles of grounded theory were used in identifying common emergent themes from video content. Three independent reviewers watched the videos and derived emergent themes. Results: Out of the 100 videos watched, 74 contained relevant data, and four themes were identified.The most frequent theme observed was caregiver/family perspectives, the second most prevalent theme was education, and the least frequent themes were patient experience and genetic inheritance. Conclusions: Social media is being used to share experiences unique to HD and provide information on the medical aspect of HD, ongoing research, and fundraising campaigns. Grants: This study was not funded by a grant.
A Qualitative Evaluation of Huntington’s Disease Perspectives on Social Media
A Qualitative Evaluation of Huntington’s Disease Perspectives on Social Media Paige Conrad OMS-III Nova Southeastern University Kiran C. Patel College of Osteopathic Medicine, Heather Sterchele OMS-III Nova Southeastern University Kiran C. Patel College of Osteopathic Medicine, Ryan Wong OMS-III Nova Southeastern University Kiran C. Patel College of Osteopathic Medicine, Sahar S Amini D.O. Objective: The objective of this study is to qualitatively examine the content of the most watched videos related to HD on the social media application Tik Tok and explore how social media is being utilized to discuss the disease. Background: Huntington’s Disease (HD) is a neurodegenerative disorder that presents with neuropsychiatric symptoms, movement disorders, and gradual cognitive decline. Later stages of HD and an increased emotional burden on caretakers have been recorded. Previous studies have explored the qualitative impacts of HD on communication between patients, family members, and caregivers; however, the use of communication through social media related to HD has not yet been examined. Methods: A cross-sectional qualitative analysis of the top 100 most-liked videos with the search “Huntington's Disease” on TikTok as of January 27, 2024, was conducted. Video content that primarily discussed HD was included and those unrelated to HD were excluded. Principles of grounded theory were used in identifying common emergent themes from video content. Three independent reviewers watched the videos and derived emergent themes. Results: Out of the 100 videos watched, 74 contained relevant data, and four themes were identified.The most frequent theme observed was caregiver/family perspectives, the second most prevalent theme was education, and the least frequent themes were patient experience and genetic inheritance. Conclusions: Social media is being used to share experiences unique to HD and provide information on the medical aspect of HD, ongoing research, and fundraising campaigns. Grants: This study was not funded by a grant.