Document Type
Article
Publication Date
11-1-2022
Publication Title
Seminars in Speech and Language
ISSN
0734-0478
Volume
43
Issue/No.
5
First Page
426
Last Page
444
Abstract
Researcher-initiated research often has little or no input from the groups who will be affected by the results of the research. The aim of this project was to describe practices of embracing patient-partners (i.e., individuals with aphasia and spouses/family members) in research. Six webinars were developed for both researchers and patient-partners that were required prior to participating in a joint conference that focused on collaborative research teams. The conference was designed based on an appreciative inquiry approach. Including patient-partners into research priorities and planning has been accomplished across various health domains in the United States, but this was the first organized national effort, in the United States, to support the inclusion of people with aphasia and their families as active partners in the research process. Consequently, it is hoped that future aphasia researchers also include patient-partner teams into their research process for more ecologically valid outcomes.
Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial-No Derivative Works 4.0 International License.
NSUWorks Citation
Brice, Alejandro and Hinckley, Jacqueline, "Building Research Initiatives by Developing Group Effort (BRIDGE): Patient-Partners in Aphasia Research" (2022). HPD Articles. 145.
https://nsuworks.nova.edu/hpd_facarticles/145
ORCID ID
0000-0002-4052-1425
DOI
10.1055/s-0042-1756644
Copyright
© 2022 The Authors
