Understanding the Experiences of Youth Living With Sickle Cell Disease: A Photovoice Pilot

Author(s)

Jessica M. Valenzuela, Nova Southeastern UniversityFollow
Lisa M. Vaughn, University of Cincinnati - Main Campus
Lori E. Crosby, University of Cincinnati - Main Campus
Heather Strong
Alexandra Kissling
Monica J. Mitchell

Document Type

Article

Publication Title

Family & Community Health

ISSN

0160-6379

Publication Date

4-2013

Abstract

A Photovoice pilot was conducted with youth living with sickle cell disease (SCD), in order to further understand their lived experience and examine the acceptability, feasibility, and utility of this method in this population. SCD is an inherited genetic condition whose primary symptom is severe pain. Youth were able to reflect on their experiences with SCD using Photovoice and the adapted SHOWeD method. Parents and youth found Photovoice to be valuable for children and adolescents with SCD. Emerging themes included the impact of SCD, the importance of everyday activities and interests, and the importance of family and support.

DOI

10.1097/FCH.0b013e318282b2f2

Volume

36

Issue

2

First Page

97

Last Page

108

NSUWorks Citation

Valenzuela, J. M., Vaughn, L. M., Crosby, L. E., Strong, H., Kissling, A., Mitchell, M. J. (2013). Understanding the Experiences of Youth Living With Sickle Cell Disease: A Photovoice Pilot. Family & Community Health, 36(2), 97-108.
Available at: https://nsuworks.nova.edu/cps_facarticles/299