This paper reviews the literature on what happens after the NICU with premature babies and their families and provides perspective of a lived experience. There have been numerous studies conducted on the traumatic experience of the NICU, however there is limited research involving the parenting process and experience following the NICU and caring for a high risk infant at home. Articles were searched through two databases, CINAHL and Pubmed, yielding 15 articles in which three specific themes were outlined; psychological distress of parents, perceptions of parents and linking family to resources. While there are programs available for families, not all families are provided access to these programs or other resources. It seems that further research should be conducted on parent’s experiences and finding out which services would be helpful after their stay in the NICU.



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