Social Support Networks among Families of Children with Craniofacial Anomalies
Abnormalities, Adaptation, Child Development, Preschool Child, Cleft Lip, Cleft Palate, Craniofacial Dysostosis, Disability Evaluation, Facial Bones, Home Nursing, Mother-Child Relations, Sick Role, Infant, Social Support
Investigated the social support available to families of children born with craniofacial anomalies and the perceived degree of satisfaction derived from these relationships. Thirty-six children (1 month to 5 years old) born with craniofacial deformities (FD) were matched by age and sex to 36 children with no significant physical or behavioral problems. The Social Support Questionnaire-Revised, the Revised Denver Developmental Screening Test, and a semistructured interview were administered. Results indicated that parents of FD children reported less available social support and were significantly less satisfied with their support. Parents of children who had more severe physical impairments and were rated as less attractive reported having less available and less satisfying social support. In particular, the social competence of the child was the most important predictor of parental social support. This result is interesting as the parents of FD children appeared to underreport the presence of behavioral-psychological problems in their children
Messer, S. C.,
Benson, B. A.,
Passmore, L. A.,
Gross, A. M.
(1991). Social Support Networks among Families of Children with Craniofacial Anomalies. Health Psychology, 10(4), 252-258.
Available at: http://nsuworks.nova.edu/cps_facarticles/622